
Psychiatric News August 20, 2004
Volume 39 Number 16
© 2004 American Psychiatric Association
p. 7
Angela's Story
Angela Kimball's account of her child's struggle with mental illness
helped convince money-conscious state lawmakers to restore mental health
benefits deleted from Oregon's Medicaid plan. Here is her testimony:
When my 16-year-old was a toddler, I had a thought no mother should
have.
I wondered if my beautiful boy would be in MacLaren [a state juvenile
justice facility] on his 16th birthday. He just did not respond as other
children did to requests, to explanations, to discipline, to normal routines,
and to love.
I did not admit this thought to anyone. I was ashamed of myself for having
it because I loved my son more than anything in this
world.
I tried parenting classes, counselors, and behavior management techniques
and stayed at home in order to pick him up from school every day and try to
manage his behavior....He made little eye contact, he spoke little, he was
hard to control, and his responses were unpredictable. We never knew what
would be broken, who might be hurt, or when it would happen....
[My son's fifth-grade teacher] said, "Angela, honey, I've taught
hundreds and hundreds of kids. And I know when a boy is misbehaving and when
something is wrong. And something is wrong. You just keep looking for help.
You'll know it when you find it."
Those simple words resulted in a profound change of heart for me....I was
far more ready to believe I had failed as a parent than to believe there was
something wrong with my child.
A few months later, we were able to see a child psychiatrist who, I
believe, saved our lives.... He asked my son to try a medication just
onceand let him know if it helped. The next day, my son came home from
school and said, "Mama, my head doesn't hurt anymore! I never knew it
hurt; I just felt like slugging people all day long, and now I can kind of
ignore them...."
It took two more years to get a combination of medications that stabilized
him. [Before that happened,] he ended up in the back of police cars, in a
diversion program, hauled to psychiatric crisis centers, and kicked out of
school and placed in a program with stainless-steel lock-up rooms and former
quarterbacks for guards....
But my son believed in his doctor, and his doctor believed in him.
Together, with the help of a wonderful school, they made progress... .The
police stopped coming to the door. The neighbors started talking to me. My son
started smiling, making friends, started enjoying school, mowing lawns, and
creating art. He started living lifeand we did too.
On his 16th birthday, my son wasn't in MacLaren. He was graduating from an
alternative school for troubled youth into a special classroom at a very large
public high school.... Now he has his own dreams.... He wants to go to college
for an art degree and to be a chef. To my way of thinking, it is really quite
simple. My son's success gives us all the hope and promise that treatment
works.
I have told you my story of hope, but now I must tell you my fears. One
reason I am here is because I am worried about my son. I am employed part time
and do not have the kind of insurance coverage that will pay for my son's
medications. I do not know how I will afford the $350 a month, as I am not
eligible for assistance programs. I worry about what will happen if my son
goes into crisis. Counties have already had their crisis services funding
cut.
My son's symptoms are in control, and Alex believes in his future. But
before this legislative session is over, he will be an adult. I will not be
able to protect and care for him forever. He deserves to have a future with
access to community mental health services that help him remain stable and
productivenot a future in the back of a police car, in a jail cell, or
in a psychiatric ward. And, mental health services work.
Neglecting mental health costs.
Related Article:
-
Sound Message, Persistence Get Results in Oregon
- Kate Mulligan
Psychiatr News 2004 39: 7-10.
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